Quinn, Kristi, Lila, Ruby and Edison

Exploring her world.. Her favorite is the pink disco ball. She hits it back and forth. She does look at it from time to time. We are so exci...

Those gorgeous eyelashes are little minefields for trying to get past... I vividly remember crying to Quinn that he could never go out of to...

Lila doesn't sleep anymore. Something that is pretty normal for kids who have abnormal EEG's (yea we are following some normal patt...

I have to say that a blessing from this experience with Lila is that we have been able to meet the most wonderful and inspiring people. This...

poor Lila she use to Love her baths. Due to the G tube this is our bath time these days.

Ok to those of you who have a different way of posting comments on your blog, the kind where you have to pick a profile (example blogs are: ...