Quinn, Kristi, Lila, Ruby and Edison

At church on Sunday Lila and I sat next to a guy who has downs syndrome. He is about my age and is a super sweet guy who always plays with t...

Gracie invited Lila to her 9th Birthday party at the Lion house. How sweet is that?! I must admit I was very excited to tag-a-long. Talk abo...

At Eliza's birthday party a few weeks ago I met a mother, Lisa, who had lost three children to MLD the same genetic disease that Eliza...

I have been craving sunshine for months now! We were lucky enough to head down to the George house (as Calder has named it) and enjoy the ra...

These past 19 months Lila and I have spent a lot of quality time in doctors offices and hospitals. Sherilyn took this picture of us at the e...

you can see evie's giraffe picture she drew for Lila in this one. so sweet Here are some pics from when Lila spent the night at Kelli...

We were contacted by the UK docs yesterday. They wanted to let us know they have submitted the manuscript for publication. Although who kno...