Quinn, Kristi, Lila, Ruby and Edison

My dear friends As you know my Lila suffers from constant seizures. These unfortunately are getting worse and worse. She will flail her arms...

Sometimes I forget that Lila  is a three-year-old. She is just so sweet and so different that sometimes I forget to do the normal things wit...

Ruby has been working really hard on trying to get the little star off of the play saucer. She's a little frustrated it's bolted dow...

This gorgeous little boy is Cai.  He lives in Wales. He has Vici  syndrome. Yesterday I got to talk to his wonderful mom Micaela. We talked ...

My little love bug got to come home. She does have another picc line so we will be doing the IV antibiotics from home. But at least we are h...

Ruby is loving face time with her daddy and sister in the hospital. I love her expressions in these photos I snapped while we waited to conn...

My baby is in the hospital again. Being in the hospital is such a stressful situation. Especially right now, not living in our house and nee...