EEG

The doctors have decided to do an EEG on Lila. I am so nervous! This seems as big of a deal to me as the MRI was. We know she is structurally alright but now we will see if all the electricity is getting to the right areas and if they are lighting up. I am terrified! This brings me back to the worst day of our lives when the doctors didn't think it was worth operating on her eyes because they didn't think enough electricity was going back to her brain. I am so scared that they are going to find similar findings for the rest of her brain.

It's scheduled for the 27th. I am asking once again for your prayers. I know that there are many of you who have never stopped praying for Lila and I thank you so so much. I really am touched that there are so many who think of our little girl on a daily basis. You will never know how much that means. If you are of the LDS faith I am hoping that you will push up your fast Sunday and fast with us on the 23rd. If you are not, we would really appreciate your prayers and good thoughts.

genetics

We saw genetics on Tuesday. They are stumped. Her tests are coming back normal, she isn't following any pattern and her physical exam didn't reveal anything except that she is cute. (tell me something I don't know) It's amazing how much they scrutinize. They were measuring ear length, looking at the creases in her palms, measuring from the eyes to the chin, all sorts of random things that were suppose to give us clues. Nothing. I should feel relieved, but a part of me was hoping that they would say, oh, she has X syndrome and it just means that she will have a slow start but will be perfectly normal in the end. The good news is that they said they would give us a 3% chance of this happening to future children, which is everyone's chance. (I didn't realize that everyone has a 3% chance of a birth defect, that seems pretty high.) Not that I know if there will ever be baby # 2 in our future.

Good news is Lila is gaining weight nicely, she is finally in the 12 pound range. 12.1 to be exact. The force feeding and pure fats are doing their job. Maybe someday we will get out of size 1 diapers. No tube for now...

obituary

PHYLLIS THOMSON

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Phyllis Joy Poulson Thomson 1922 ~ 2011 Phyllis Joy Poulson Thomson, 88, passed away Thursday, January 6, 2011, after a short illness. She was born July 30, 1922 to Wallace Eugene Poulson and Estella Payne in Richfield, Utah. She graduated High School in Richfield and spent some time at Brigham Young University, but her well-known energetic enthusiasm for life blossomed when she moved to Washington, D.C. with her husband Talmage Maiben Thomson, to whom she was sealed in the Manti LDS Temple on December 11, 1942. It was there where her truly independent and purposeful personality emerged as she aided Talmage in obtaining his medical degree from the George Washington Medical School in 1948. She and Talmage moved to Pleasant Grove, Utah, in 1949 where he established his medical practice and she became an indispensible asset to her husband, the community and the people she came quickly to love and cherish. Her accomplishments in the medical auxiliary as well as family, civic and religious service are literally too numerous to mention. She was particularly proud of her service on the Pleasant Grove City Council, her involvement as Co-chair of the Discovery Park project, and as Stake Relief Society President in the Timpanogos, Utah Stake. Her testimony of Jesus Christ was sure and unshakable, and the doctrines of the Church of Jesus Christ of Latter-day Saints guided her life's actions and goals. She loved to give of herself and her time, not only tirelessly to her family but also to her neighbors and vast numbers of friends in Pleasant Grove. She always reached out to others and invited them to be a part of her life. She deeply appreciated the beauties of nature, and loved her yard and the view of Timpanogos from her kitchen window. Her backyard was her pride and joy, and her grandchildren, great grandchildren and "adopted" families loved to play on the airplane and the huge jungle gym as well as enjoy refreshments, freely offered, under the shade of her backyard trees. She always appreciated the beauties of God's creations and openly and regularly expressed that appreciation. She is survived by her children, Dr. Stephen (Ruth) Thomson, Ogden; Dr. John (Patti) Thomson, Salt Lake City; David (Sally) Thomson, Taylorsville; and Barbara (Lynn) Bullock, Highland; 18 grandchildren and 33 great- grandchildren. She was preceded in death by her husband, Talmage, her parents, one brother, Stanford Poulson, and five sisters: Lorna Bodily, Enid Peterson, Ferol Wilkinson and Joyce Poulson, and a granddaughter, Adrienne Thomson. She is survived by two sisters, Gwen Lloyd and Marilyn (Paul) White and in-laws Garth Wilkinson and Faun and Rex Warner. Funeral services will be held Saturday, January 15, 2011 at 11:00 a.m. in the Timpanogos Stake Center 800 North 100 West, Pleasant Grove. Friends and family may gather Friday January 14, 2011 from 6:00 p.m.-8:00 p.m. at the Olpin Family Mortuary, 494 South 300 East, Pleasant Grove, and prior to the service on Saturday from 9:30 a.m.-10:30 a.m. at the Stake Center. Interment in the Pleasant Grove City Cemetery. Condolences may be sent to the family at www.olpinmortuary.com

Grandma Thomson

My Grandmother Thomson passed away on Thursday. She was 88 years old. She went in for an operation and never recovered. I was so blessed to be able to go over to IMC and tell her I love her and good bye on the day she passed. She woke up enough to give me a huge smile and tell me she loved me. It was such a special moment. I feel so sad that she is gone but so happy for her as well. All day that day she just kept saying, I wish I could just go. She is now reunited with my grandpa after 18 years of being without him.
My grandma was so fun. We loved to sleepover at her house when we were kids. We always did the same things but they were so fun and we always looked forward to them. We went to the natural history museum at the Y, the doll museum (which Mikey loved!) we went to peppermint place, we made cotton candy, watched old movies, danced in the moonlight, played on the slip in slide, went down her zip line and played with the treasure trove of toys that she was always collecting. When I was little I loved going to her house, it was filled with the most amazing things. There was always a new gadget, and she was always willing to sit down and show it to me. My grandma was always the social butterfly. She was really involved in the community and was even on city counsel. She was instrumental in building a huge park down in Pleasant Grove. She loved to chat and she would always bring her heritage gifts (my cousins are smiling) I will miss her dearly. She was such a wonderful, fun grandma. I am so happy that she was healthy till right up until the end. She lived alone, and even kept up her yard with very little help. What a blessing that she went to fast. We Love you GGT!

updates....

I got this shot of her sucking her thumb! I thought it was the cutest thing I have ever seen

I feel like this week has been a roller coaster. Lila has been cooing so well the past few days. We will just lay there and coo at each other. Her face is so cute when she coos. She purses those little lips and tries to get the sound out, you can tell she is so excited to find her new voice. She also has been sucking on her hands and thumbs. It's been really fun.
We got the test results back from genetics, they were normal. Exciting! But the doctor did say the test was like looking at a highway and you can only see every 100 yards so she might still have some syndrome. (frustrating) so the next step is to meet with genetics to see if she is displaying signs of a syndrome and then they can specifically check for that. The good news about that is they had a cancellation next week and so we get to see them sooner than we thought.
Dr. Filloux, our neurologist also said that he wasn't thinking cerebral palsy. I told him what the developmental Pediatrician said and he said that he didn't see any of the markers of it. He said that he has seen kids who you can tell at this age but he doesn't see that in Lila.
We had to see Nutrition this week. Lila has dropped off the charts for weight. They gave us pure fat to mix with the breast milk plus fortify it with formula to give her extra calories. If she doesn't start to gain weight than we will have to put in an NG tube. I don't want to put another little tube down her beautiful nose! How defeating. But we have been doing well in forcing her to eat. Hopefully on Wednesday when we weigh her they will decide that is not necessary.
We saw Dr Dries (the ophthalmologist) he said her eye looks good, no scar tissue or swelling. Her pressure in her eye is down so hopefully no glaucoma. He did say that we should be seeing more results by now though. When I asked if he thought that she wouldn't have sight he said he didn't know. Pretty devastating since he was so excited last time. The saving grace was Sherilyn our vision therapist, she said that she has seen kids like Lila all the time who have gone on to have vision. She said she was really excited for Lila's future.
We had all of the early intervention people this week. I really liked them. We will see vision about every week, physical therapy twice a month and Occupational once a month. Hopefully we will see something.
We found a contact that fit Lila's right eye really well, unfortunately she blinked it out and we couldn't find it. Luckily we had a spare, of the ones that don't fit as well, till the new one is reordered. The next day however she blinked out the left one, this was a little more serious. This is the really pricey one and due to a miscommunication we hadn't ordered a spare. This could take weeks, so Lila is literally blind in one eye as of right now. This makes me really scared for long lasting repercussions.
Life is just a never ending up and down. I was doing really well for a few days and now I am sinking again. This is really hard. I just adore this little kid so much, I want her to have all the opportunities in the world. I just keep thinking, wouldn't it be hilarious (and the most amazing miracle) if Lila is perfectly normal in the end ? Oh how I wish and pray.....

Side note: A half hour after I posted this post Quinn was playing with Cubbie and was crawling around on his hands and knees in the living room when he looked over onto the kitchen floor. Literally right there, where we have walked a thousand times, was Lila's contact. A day later and perfect, no tares or scratches. A miracle! What an answer to prayers.

family pictures

We had family pictures during the holidays and here are a few of my favorites. Sorry there are so many but this blog is my scrapbook.
I adore my family. 2010 was a hard year for my family, there were a lot of trials and heartbreak, but my family has buoyed each other up and has been wonderful supports to each other. I feel very blessed to have all of them.

Happy New Years

Lexi and co pampered us with pedicures.

Lila stayed up till midnight with us. I was shocked! She was awake from five in the afternoon till after midnight, she was just taking it all in. She was up to toast to 2011 with some Martinellis.

Happy New years! Thanks Daphne for hosting a new years party, we had a fun time playing games and eating yummy Asian Star.