Rare disease day

It's  rare disease day. I am so grateful for my rarest of the rare Lila. What an angel she is in my life. I am grateful for her and for the experiences she has brought along with her. So many amazing wonderful moments and people have enriched my life because she is in it. Love her and the other "rares"out there. 

Sitting

We've got a sitter. 

First day of primary

Lila was finally well enough to attend primary. She Loved singing time, her favorite song was "I'm all made of hinges". And we especially adored our teacher, sweet grandma patsy.  

Elmo

Lila has a new love. She adores Elmo! We have been watching seasame street and everytime Elmo's world comes on or Elmo is part of the  segment she starts to  smile and laugh. I thought it was just a fluke at first but she has been pretty consistent in her smiles. This is huge! My baby has started to love something on her very own. It's been so fun. 

Six months

My love is six months!!! How?!?! She is 17 pounds three ounces.  75 th percentile for  weight and 50th for height.  

She just brings so much joy. 

Six months!!!!

Ruby's church accessory