When I was sixteen I was so excited to receive my
patriarchal blessing. I was anxious to see what if anything it would say about
my future husband. I thought that it might give me some glimpse as to the
magical fairytale that I was about to experience. To say I was boy crazy at
that age would be a bit of an understatement. I remember sitting around with
friends daydreaming about early married life and talking about how many kids we
wanted and what neighborhoods we would raise them in, not for one moment
thinking there might be a different plan in store for us. I remember a friend’s mother sighing as she
listened to us talk about our futures and warned us, ladies; married life is
when the hard stuff comes. But at
sixteen we knew better and we knew we were destined for enchantment.
When I met my best friend it was like magic and I knew, after
spending time with a few toads, that this was the man from my blessing. This
was the good and faithful man who would take me to the temple and love me for
eternity. And for five years it was blissfully perfect, full of travel,
adventure, friends and family. It all came so easy. And then our daughter was
born.
In July 2010 Lila came to our family. She was so gorgeous. White blonde hair with
blue eyes framed by the longest eyelashes you had ever seen. And for two whole
months I thought that my perfect little family was beyond what I had even
daydreamed it could be back as a teen.
Then the doctors started to voice concerns and specialists were
summoned. Every new appointment found a new problem with our perfect baby. We were told that something was very wrong
and that they weren’t sure that she would gain even basic life skills. We
worked constantly with therapists and tried early intervention only to be disappointed
month after month. My little girl could never lift her head up, couldn’t eat on
her own, roll over, see very well or even communicate at all. Finally at
fifteen months we got the earth shattering news. Our daughter had a terminal
genetic condition called Vici syndrome. Most kids didn’t live past the age of
three. She would never develop and would never be able to communicate. She
would be constantly sick, need 24 hour care and would seize all the time. My
daughter would never call me mom, would never go to a daddy daughter dance and
would never give her little sister advice about boys. My fairytale was
crumbling.
For months I was in a dark place. Angry at my circumstances
and mourning the loss of the expectations of what was to be. I struggled with
the idea that this was now my life. That the special needs world had become my
reality and my new community of mothers would be discussing seizure meds and
wheelchair options not play dates and preschool. I looked at my friends and family who had
healthy children with envy and at times self-pity over took me.
During this time my best friend struggled to cheer me. He
wanted so much to take away the pain of a grieving mother and yet he couldn’t.
He stood true and epitomized the quote by president Hinckley when he says. “ I
am satisfied that happiness in marriage is not so much a matter of romance as
it is an anxious concern for the comfort and well being of one’s companion. Any
man who will make his wife’s comfort his first concern will stay in love with her
throughout their lives and through the eternity yet to come.” And slowly with his support and many others I
began to see that this non-fairytale life was more beautiful than I first
thought it could be. I still had a wonderful family and an
incredibly sweet partner in the journey and finally that I really did have the
absolutely perfect daughter. Lila may have not been able to say the word mom
but I felt her love every time she laughed at my voice and smiled when I held
her. Being in constant service of her
was in no way burdensome. It was impossible not to fall in love with her. My
life was happy. It was full of love.
Through a miracle we were able to welcome our second
daughter Ruby into the world. Knowing that these sisters wouldn’t have much
time together we decided to name Ruby for Lila’s birthstone. That way Ruby
would carry a bit of her sister with her. Life for eight months was again very
nearly perfect and while it was looking a bit different than I had once dreamed,
it was just as joyful as I had hoped.
In April of this year my sweet angel Lila got sick for the
thousandth time and just like she had always rebounded before I truly thought
she would be just fine. The hospital even let us go home explaining that it
most likely was the common cold. Four days later she quietly fell asleep and
never woke up. I thought that having a special needs child would be my hardest
trial but as it turns out not having her is a hundred times worse. My whole world has been shattered. Being
Lila’s mom for the past four years opened my heart and saw me through the
refiners fire. She was my constant little companion and my world revolved
around her. As I wrestle with my grief I have questioned why my amazing
daughter had to endure it all. Was it
only for me to realize to be happy with Heavenly Fathers plan? To see our
blessings through the trials? Or was it simply to give love and feel the peace
of heaven when you held her? I am sure Lila came to us at this time for many
reasons but I have come to understand that she came here most of all to be a
part of an eternal and ever loving family.
About a week after Lila passed Quinn and I headed downtown
to walk around temple square. As we pushed our eight month old in her stroller
and ached over the emptiness that her big sister had left we began to talk
about our wedding. I pondered that it
was amazing that we didn’t even know the gravity of what we were doing on that
day. Yes I realized that I was marrying this amazing and sweet guy but I had no
idea that what I was doing that day would let me be with my first born again after
her death. That kneeling at that alter
would entitle me to hold those tiny hands that are a perfect match to mine. How could I ever grasp the love of a mother
who is desperate to see her beloved daughter? How could I have known that what
Quinn and I were doing on that day would make Lila a part of our family for
eternity.? I love that as I was being sealed to Quinn I was also being sealed
to Lila and to Ruby. As Spencer W.
Kimball said, “ Marriage is perhaps the most vital of all the decisions and has
the most far-reaching effects, for it has to do not only with immediate
happiness but eternal joys as well.”
Temple marriage opens up the most wonderful blessing that we
can partake of in this life, an eternal sealing to our loved ones. Whether we
are sealed to a spouse with children of our own or are children with parents
who have been sealed we have been ordained to be permanently connected to our
loved ones.
In Doctor and covenants section 130 verse 2 it states, “And
that same sociality which exists among us here will exist among us there; only
it will be coupled with eternal glory, which glory we do not now enjoy.” How
sweet is this promise. My little girl will remember me and our interactions and
activities in this life. But she will have eternal glory, a perfect body. She
will be able to join in on the family dance sessions instead of me twirling her
in my arms. She will be able to freely swim, her absolute favorite activity, with
strong arms and sturdy legs, beating, I am sure, her once competitive swimmer
mom in a race.
Robert L. Millet said, “ Love is intended to last longer
than time, to span the veil of death and continue everlastingly.” The love
between Lila and I is so pure and fervent.
She couldn’t vocalize but I was able to understand her, small variations
in her facial expressions told me so much, if she was uncomfortable, sick,
happy or about to give you the most amazing smile. A tiny flick of her eyes
told me all I needed to know. She could
read me as well and was especially cute and happy on days that were a struggle.
How could that kind of love be anything but eternal? You cannot tell me that a
loving Heavenly Father would want nothing more than to see me with my daughter
again and for her to finally be able to find her voice and tell me the words
that I have so longed to hear.
At the beginning of April of this year at general conference
president Uchtdorf gave a talk. In it he stated, “We are made of the stuff of
eternity endings are not our destiny.” I
remember that quote hitting me hard as I sat on the floor helping my immobile
child color in the conference packet her grandmother had made her. Endings are
not our destiny. How much those words would comfort me when just a few weeks
later I was in my daughter’s hospital room on Easter Sunday partaking of the
sacrament. The spirit overwhelmed me as
I took the bread and water knowing that because of the savior my sick little
Lila would be whole and have eternal life. I remember looking at my partner and
feeling grateful for the decisions that we had made, for not only would Lila be
made whole but that we would be with her. That Sunday would be her last in this
world.
On a very rainy Saturday morning I took my girl in my arms
and assured her that if she had to leave her broken body behind that she could.
I told her of my absolute love and that I would be with her again. Minutes
later she closed her eyes and peacefully left her small, damaged and
inefficient body.
Endings are not our destiny. These words mean more to me now
than ever before. As the months without my daughter have been the hardest of my
life I am consoled with the knowledge that this separation is but for a moment.
Because of our merciful savior and the sealing powers of the priesthood I will
see and raise my girl again one day. She will call my name and tell me she
loves me, She will dance with her dad and she will share stories and advice
with her baby sister. I know this to be true, because a life without my Lila
makes no sense. I simply cannot fathom
it. She is still very much apart of our eternal family.
I am so grateful for this gospel, for the atoning sacrifice
of my Heavenly brother and for the mercy of my Heavenly Father. I am humbled
and indebted to the sealing powers of eternal marriage. I am grateful for that beautiful fairytale.
Quinns talk
Quinns talk
A you can see Kristi and I are not shy
to share our feelings about the recent loss of our little girl. She is with us
every step of the day. Since the day of
her passing she has permeated my thoughts and actions. I reflect on my time
with her often and marvel that see picked me. Lila presented a very unique
situation for Kristi and me. We knew early that all would not be well. And so
we grieved. The sadness and anger came and overflowed. Looking back I know
those feelings have never gone away completely nor will they eventually
disappear. Eventually decisions needed to be made and as a family we decided
that happiness was our only real option. Together we turned to the Lord and the
Spirit showed us light. We received an appreciation for Lila’s perfect spirit
as well as a deep sense of gratitude for the knowledge of her eventual reward.
Despite those choices we made, things got much worse until she eventually couldn’t
stay with us. Now we grieve again and the feelings of doubt and fear and anger
return only now they come more often and stay too often. And those decisions we
have made before must be made again and again and again. I look out at this group
of Latter Day Saints and I know doubt and fear and pain and trials accompany
many. Loss and failure are a part of life that everyone will feel and so we
come back week after week making those decisions to commit to Christ regardless
of anything else knowing full well we will come up short and things won’t goes
as planned but exerting any faith and hope that we have a loving Heavenly
Father who will help us. Lehi attempted
to convey this to his son Jacob when he said “ 11 For it must needs be, that there is
an opposition in all things. If not so, my firstborn in the
wilderness, righteousness could not be brought to pass, neither wickedness,
neither holiness nor misery, neither good nor bad. Wherefore, all things must
needs be a compound in one; wherefore, if it should be one body it must needs
remain as dead, having no life neither death, nor corruption nor incorruption,
happiness nor misery, neither sense nor insensibility. So why are we here? Am
I just a small defenseless ship left to be tossed on the waves bound to an eventual
crash into the rocks? Later in the same chapter Lehi reassures Jacob when he states, 24 But
behold, all things have been done in the wisdom of him
who knoweth all things.
In
that one short phrase we are definitively taught that good and bad come. And
regardless of frequency or potency or duration of pain and sorrow, his desire
for us is Joy. The first step to finding
true happiness in this life is to acknowledge God exists. The second step would
have to be what does He want for me? Picture a life in which your earthly
parents never provided any direction towards happiness. The thought of a stale
and unfulfilled life is enough to break the heart. In “The Family. A Proclamation to the World”
there is a beautiful statement that describes our beliefs as to how far our
heavenly Father wants us to progress. It states
“IN THE PREMORTAL REALM, spirit sons and daughters knew and
worshipped God as their Eternal Father and accepted His plan by which His
children could obtain a physical body and gain earthly experience to progress. toward
perfection and ultimately realize their divine destiny as heirs of eternal
life.” In this marvelous statement we see the Plan of Salvation in its entirety.
And woven into that statement is the truth that we achieve eternal life only
through family. One is a spiritual family where as spiritual children we
accepted our father’s plan and the other is our mortal family, which is the
only way we get to this earth and continue to follow in the Saviors footsteps
as best we can. In his book Mere Christianlty C.S. Lewis offers his insight as
to just how far our Father wants us to progress when he stated “The command Be ye perfect is not
idealistic gas. Nor is it a command to do the impossible. He is going to make
us into creatures that can obey that command. He said that we were 'gods' and
He is going to make good His words. If we let Him - for we can prevent Him, if
we choose - He will make the feeblest and filthiest of us into a god or
goddess, a dazzling, radiant, immortal creature, pulsating all through with
such energy and joy and wisdom and love as we cannot now imagine, a bright
stainless mirror which reflects back to God perfectly His own boundless power
and delight and goodness. The process will be long and in parts very painful;
but that is what we are in for. Nothing less. He meant what He said.” I
feel truly blessed to agree. So lets look at Heavenly Fathers plan for our
progress while we are here. I think of
my childhood and the relationship I have with my family now and I am incredibly
blessed to see God’s hope in action for me. Is there anything good in this
world that they don’t want for me? Do they at anytime hope that I fail and
fall? Of course not! They do on the other hand understand by their own life’s
experiences that you only progress because of the trials you face. I was taught
and still am today taught through their words but more importantly example what
a Christlike life looks like. Later in the proclamation to the world this is
model is described. “Successful marriages and families are established and
maintained on principles of faith, prayer, repentance, forgiveness, respect,
love, compassion, work, and wholesome recreational activities. There is no better way to learn love,
service, selflessness, and sacrifice than in a loving family.
The
unfortunate and ugly reality is that for all the good the family does, not
having that atmosphere I have described that I have enjoyed in this life can
cause serious and sometimes irreparable problems. And I must recognize not
everyone can describe his or her family life as I can. When I looked in the
eyes of my two little girls on the day they were born I felt such a
responsibility to protect and love them no matter what. But is it possible to
neglect them? Could I ever possibly abuse these 2 angels in any way? Can I fail
as a Husband or a father? A scary part of our Heavenly Fathers plan is for his
imperfect children to bring perfect spirits into this world and teach them to
walk a righteous path. Due to our inherent and learn imperfections, and we all
possess many, it is a constant uphill battle to attract and apply the many good
examples in this world while deflecting the attributes of the adversary.
Selfishness, contempt and impatients are waiting at our front doors. I look at
my life ahead and I see a minefield of possible failure and then I see two
clearly defined footprints navigating the perilous terrain. The beauty of the Lord’s plan is that every
day is a day of decision. Will I endeavored to live a Christlike life or not?
Are my goals humility, patients, charity, and love or do I seek after something
else? Weather you have been brought up
in a loving family or not each day is a day of decision to provide a more
clearly defined path to or Savior. Our prophet and apostles remind us of this
responsibility when they said “Parents
have a sacred duty to rear their children in love and righteousness, to provide
for their physical and spiritual needs, and to teach them to love and serve one
another, and observe the commandments of God” I taught a lesson in Elders Quorum
last week on eternal marriage. I have tried not to duplicate anything so the
elders wouldn’t fall asleep but there is a quote I used then that struck me as
to the importants of a celestial family by Elder Nielson in his Oct conference
2008. He said, “ All church activities, advancements, quorums, and classes are
means to the end of an exalted family.”
I now find myself at an critical crossroads
in my life. On one hand I have one little girl who has returned to her Heavenly
Father. In this life Kristi and I didn’t get to teach her all the lessons about
our Savior that we were taught. Our role was changed somewhat from our
expectation of teaching a healthy girl with imperfections to being a caregiver
to a perfect angel with a broken body. I know she still learned from me. But I
feel I learned much more from her than she learned from me. On more than one
occasions I caught her rolling her eyes and sighing at her silly dad. It was as
if she was saying, “ If only you knew what I knew.” On the other hand I have a
1 year old who has enough energy and passion for her sister and herself. All
that I couldn’t teach Lila while she were here I can now pour into Ruby. And I have a feeling she will test every idea
and theory that enters in to her head. Today I get to make the decision to
teach her that her sister is waiting for us. I also get to teach her how we can
all return to be with Lila and our Heavenly Father and Savior. I get to show
her that our family is the most important adventure she will have on this
earth.
So weather your past family
experiences are filled with the love of Christ or not may we all today make
that decision to make our future an endeavor to return to our loved ones and
our Loving Father by strengthening our families foundation in Christ’s gospel.
I close with one of my favorite scriptures 2 Nephi 25:26 26 And we talk of Christ, we rejoice in Christ, we
preach of Christ, we prophesy of Christ, and we write according to
our prophecies, that our children may know to what source they may
look for a remission of their sins.
These are beautiful and so true. Thank you for sharing this wisdom and testimony.
ReplyDeleteThank you for sharing this! It brought tears to my eyes reading of the road you have traveled. I pray that you find peace and joy. You two are amazing individuals and I am in awe of your insight. Much love, Traci
ReplyDeleteIncredible! I wish I had been there to hear your talks in person.
ReplyDeleteThank you. Such hope and faith is always a blessing to hear. By sharing these talks you have definitely added to my faith and hope.
ReplyDelete