Wednesday, October 31, 2012

Happy Halloween!

Lila was the cutest little Giraffe.
Gracie and Lila were both Giraffes. They were so adorable. 

Lila's Giraffe horns were the talk of her costume. People kept asking me how I got them to stick straight up. Vici kids hair naturally sticks straight up. It comes in handy for Giraffe horns.

Monday, October 29, 2012


Lila was all laughter and smiles this morning.

Friday, October 26, 2012

Happy birthday Quinn!

A very happy birthday to my wonderful husband Quinn! We love you so much sweetie and we hope you know just how much you mean to us. You are such an amazing person. I feel very lucky that I get to share this life with you. You can Make every situation a wonderful experience. I adore your wit, sense of humor and charm! Lila and I are so very lucky that you are in our lives. I hope you have a wonderful day and know just how much you are truly loved!

Thursday, October 25, 2012


Lila had her ear tube surgery yesterday. It went really well. Lila did so well, even when we kept getting pushed back during the day she was still all smiles and a great trooper. While she was under anesthesia they ran some tests on her. The hearing test that tested her brain response came back abnormal, not really a huge surprise. The eye exam they did Came back better then they thought it would.
I think what I've learned from all the surgeries and all these tests is that Lila is just her own little person and she surprises the docs on a regular basis. Even if they can't explain why she can hear, she does and even if they say her eyes are not that great I know she can see me. What a sweet blessing she is for us. She is a daily miracle.

Thursday, October 18, 2012

Pumpkin carving

We had so much fun carving pumpkins with my family.

Sunday, October 14, 2012

Soul Searching

The great thing about having an angel reside in your home is that she gets into your heart and makes you look at yourself differently. Its not secret that the last few years have been a bit rough and with our current fertility issues it may not be getting any easier for a while. I have been trying to handle it the best way I know. Quinn is so amazing at looking at the bright side, putting our current situation into an eternal perspective. I think at times it has rubbed off on me. I will try and have a good attitude, try to see this as an opportunity to prove to myself that I am a good person, a strong and faithful person. But then there are those days that can swallow you whole. There are days that hurt so much that I am sure I am not a nice person to be around. Sometimes it hurts so much you just want the whole world to know how much, and in those moments I pray I have not offended anyone. Through some soul searching, I think I know that I could be curt and abrupt. To the people who never called me, or friends who stopped talking to me because you just didn't know what to say. I can now say that I understand. Half the time I don't know what to say to myself. I can see why you would have wanted to leave me alone. Sometimes my grief could be all consuming. To those brave souls who still called, who sent notes or gifts, or who showed up on my doorstep because you knew that I needed a hug. Thank you so much. Your acts of kindness have meant more than you will ever know. It has given much needed balm to a wounded heart.  You have taught me what love and friendship is and I will try to learn from your example.
I don't know how much longer Quinn and I will be wondering down this bumpy and seemingly never ending road, but I know that Lila has made me want to be a better person. To handle each new disappointment with courage and grace. I hope someday to be able to help others going through hard times, to be as inspirational as some of you have been to me.

Thursday, October 11, 2012


I have always wanted to take Lila for a hike up in the mountains. It is a little bit tricky since she can't hold her head up. Knowing how to transport her is a concern. We thought we would take our chances with Bob. We took her up Millcreek today and it was incredibly gorgeous! The leaves were still really beautiful up there. We had such a wonderful time.

Wednesday, October 10, 2012

Gardner village

We were so lucky to go to Gardner Village with Nikki, Eliza and Caroline to see the fun witches. I love this fall tradition!

Friday, October 5, 2012


Today we saw a new specialist at ENT. Turns out that our little lady has been having severe ear infections and not complaining. The doctor kept asking if I was sure that she hadn't been screaming more than usual. He couldn't believe that she would be so calm after looking at her ear. It had been severely ruptured. He said that the anatomy of her ear was a little bit off, and would be likely to continue to have ear infections because of it. He sent us over to audiology where we did a Hearing test. She failed pretty miserably. This is especially scary since some Vici children do lose their hearing. Failing tests isn't really new to us but somehow is still hurts your heart when they sit down and explain how normal should look and then show how Lila's test looks and they don't even come close.  The doctor is concerned that her constant ear infections have left permanent hearing loss. He said we could do surgery to put in some tubes to help with that buildup around her ears. Then he said unless you don't really care if she has some hearing loss! Since we don't have to be concerned about speech. I was a little taken back. I said hearing is pretty much the thing we got going for us so let's do the surgery. Having Lila hear is a pretty big priority. I love when she smiles when I talk to her.
I am surprised how use to these kind of appointments I have gotten. When I explained to the doc that the average life span for a Vici kid is nearly upon us I didn't even get teary ( a new thing for me ) It wasn't until I hit the lobby that the tears started to fall. While talking to the docs I remained calm and to the point. I think I had some extra help today.
 So the little lady is going to have surgery once again. I know putting in tubes is a pretty simple procedure. But you kind of feel like once in a while it be nice to catch a break. I just really hope that we don't have any hearing loss just because Lila such a good little trooper. He even mentioned maybe the need for hearing aids in the future. Poor little lady I really can't believe that she's been living with this and not complaining.

Wednesday, October 3, 2012

Vision therapy

Lila had so much fun at vision therapy today. Our therapist brought switches that when pushed would make the giraffe move, a fan blow or a top spin. She was loving being able to control her toys herself.
Lila's therapist and I were talking about how much work it is for Lila just to look at things. It's amazing how much we take for granted with healthy bodies.