Update: The amazing and wonderful researchers in England have released the needed information to make pre-implantation genetic testing possible!!! This in itself is a MIRACLE. I cannot express to those of you who are not familiar with research, labs and medical timelines just how incredible this is. The fact that we diagnosed Lila when a gene was not known, to a year later having the sequence in our possession is nothing short of amazing! Our genetic counselor has been researching labs who can create a test (since we will be the first couple to ever do this kinda of testing for Vici) for us and a lab in Chicago said yes! -I know some people might have ethical problems with us using genetic selection, and believe me, we are not trying to "play God" we feel we are just taking advantage of modern medicine and doing some preventative screening to have healthy children. I hope that those of you who do find this ethically wrong will still be able to support us. I can't imagine having to go through this again. I don't think I am strong enough to say good-bye to a child, let alone two.- So now all that remains is coming up with a substantial amount of money! Here is where my thank you's come in.
If your my friend on Facebook you might have seen a few people post an indiegogo campaign. A co-worker of Quinn's has gone onto the site and made a page called "Lila needs a sibling". Here people can donate to our efforts in raising money for the in vitro process. This has been so touching and so hard for Quinn and I. Asking for help has been one of the most humbling experiences in my life. I was raised that if you can't afford something you don't get it. So when Quinn's friend Jeff made this site I was both touched and very uncomfortable. I didn't want to tell anyone about it. I was being a bit prideful and just wanted to hide. But I have been so touched by the people who have donated that I have to say THANK YOU!!! So far the site has raised over 2400 dollars. That is almost half of what the test will cost to create. I have been overwhelmed by the individuals who have stepped up to show their support monetarily and also the people who have anonymously contributed. Even one of Quinn's high school friends stopped by one night with a very generous check. How amazing all of you are! I am floored by your sweetness. That you would think of my family in these hard economic times and want to help us realize our dream of having healthy children. Lila performs miracles everyday, one of which has been showing me the angels around me. You all are so inspiring. I cannot thank you enough. I hope you all realize how incredible you are.
Hopefully there is a happy ending for us. Someday I hope to dance at a child's wedding and kiss the sweet cheeks of a grand baby. And I know Lila will be there with me. I have no doubt that my own personal guardian angel will be cheering on her siblings. We will be so grateful for any spirits that will come into our home. We are still pursuing adoption, but we realize that could take years and we are anxious for more little ones. We are excited that there is hope once again in our lives, a future to work for.
Friday, May 25, 2012
Sunday, May 20, 2012
Thursday, May 17, 2012
Poor baby Lila had a temp of 105.6 last night so it was off to the ER. We were doing so well for so long that this sickness took me by surprise. Sometimes I pretend that Lila is always going to be alright. It is so hard to come to the realization that she wont. They think she has a kidney infection. Last year a kidney infection landed us in the ICU so I am so happy that she is home and not at Primarys right now. We will just hunker down and cuddle for the next few days. I am so happy I have more days to do so.
Tuesday, May 15, 2012
All day I have been thinking back to when Lila was around four months and her Grandpa gave her a blessing and said that "she would surprise the doctors with how well she did." At the time I thought that meant our little girl would walk into primary's one day and make the rounds to all of her specialist, showing off the fact that she was completely normal. As time went on and that wasn't the case I became so frustrated. Now I realize that little miss is going to do well in her own little sphere. She is doing so well for a Vici child. We are blessed for smiles and for brief moments of eye contact followed by a smile (those are my absolute, hands down favorite moments in life) and laughter.
Saturday, May 12, 2012
Friday, May 11, 2012
So you can imagine how touched I was when an old friend sent me tulips and chocolates this week telling me that I was a good mom. For a moment I felt a little bit included in this holiday. That I could say the day was for me as well. Thank you Margot.
Wednesday, May 9, 2012
Lila wasn't feeling very good either right before Jett came. She was hysterical and I thought we would just have to put her to bed (hence the jammies) but once Jett came she calmed down.
Thanks Cody and Tennille for coming over and sharing your angel with us. You guys are awesome! We are so sad you are moving but we will keep in touch. Love you baby Jett!