My poor sweet baby. She has so much going on this hospital stay. She has an ear infection, Pseudomonas, pyelonephritis and parainfluenza. It's pretty safe to say that she is horribly miserable. For some reason her bladder is not emptying. They're having to cath her to help her with that. I'm really nervous because another Vici boy has the same problem which means that we might have to be doing this on a daily basis from now on. It just seems like her complications keep piling up. I love this little girl so much. I hate to see her suffering.
Friday, November 29, 2013
I feel like the day after Thanksgiving is a holiday in its own right. We go get a Christmas tree, decorate it, watch movies, spend time together. we were even going to go meet Santa this year with the Make-A-Wish kids. Unfortunately lila had to go to the ER with dad. So Ruby and I are trying to get into the holiday spirit without our best friends. We sure miss them.
Thursday, November 28, 2013
Lila is terribly sick so the girls all stayed home and hunkered down. It was sad to miss the festivities but it made me extremely grateful that Lila is still with us. Whenever she gets sick I have to face the reality that she could leave me at anytime. It also made me so grateful that ruby is healthy, happy and developing normally. I have so much to be thankful for this year!
Ruby and I playing while Lila slept
Friday, November 22, 2013
Today while feeding Lila lunch she had a big seizure and knocked the bottle out of my hand. I yelped from surprise and then asked Lila if she was OK. She started to belly laugh, loud full body laughter. Which made me laugh really hard. We both sat and laughed with each other for about a minute. It was one of those sweet moments I don't want to forget.
Wednesday, November 20, 2013
Sunday, November 17, 2013
Saturday, November 16, 2013
Friday, November 15, 2013
I got a call from Primary childrens today. They said that Lila's echocardiogram came back and there were some changes from her last one. They said that it looks like her heart is functioning 29% less than it use to. It also looked like her heart valves were dilated. Oddly enough it went to the ENT doc so they also said they couldn't really interpret what that meant and to call cardiology to set up an appointment. It is always so weird to receive news like this. I know its coming but when they finally tell me that it is happening it feels like a bad dream. I knew heart issues would arise, (our friends Vici child died because his heart valves were so dilated that he couldn't pump blood anymore) but a small part of me thinks that maybe Lila is immune to the severe vici symptoms. I may be paranoid but I feel like things are starting to build up. We added cardiology and nephrology this year, potassium medicine and still can't control Lila's ever increasing and sad seizures and suction is a constant issue. I am a little nervous. I still need Lila. She is doing much more good to me than I am for her and I feel like she is my buddy, my ever loving, patient and kind friend who I share my day with. We are in this adventure together and I can't imagine it without her.
The real estate company came and took professional photos of our home. I wanted to keep them for my own scrapbook to remember our house someday. So don't mind this post, this is just for me. Unless you want to buy it.....
Thursday, November 14, 2013
Wednesday, November 13, 2013
Quinn and I have decided to put our house on the market. It's with incredibly mixed emotions. We've been in this house for almost 8 years. I've brought home my babies to this house. It has definitely been our home and our place to grow and learn. I hope that who ever buys it next will love it as much as we did. If you know anyone who is interested let us know.