It's rare disease day. I am so grateful for my rarest of the rare Lila. What an angel she is in my life. I am grateful for her and for the experiences she has brought along with her. So many amazing wonderful moments and people have enriched my life because she is in it. Love her and the other "rares"out there.
Sunday, February 23, 2014
Friday, February 21, 2014
Lila has a new love. She adores Elmo! We have been watching seasame street and everytime Elmo's world comes on or Elmo is part of the segment she starts to smile and laugh. I thought it was just a fluke at first but she has been pretty consistent in her smiles. This is huge! My baby has started to love something on her very own. It's been so fun.
Friday, February 14, 2014
Happy valentines day!!!!
My heart belongs to these two. And a cute boy named Quinn
Thursday, February 13, 2014
My sweet sister sent me these pictures today. It was crazy to look back. This was almost four years ago when my baby was really just a baby. Such a hard and beautiful time. I was just realizing that Lila was different. I had no idea how much. If I did I would have probably given up on life right then and there. (It's good sometimes to have things come slowly) I look at these pictures and can't help thinking just how far we have come. So many horrible tearful nights, and yet also nights full of laughter and sweet snuggles.
I remember this night well. Quinn was gone and I went to my sisters to try and wrap my head around what was going on. You can see that I have been crying. I wanted to desperately believe that Lila's new glasses were the answer but in my gut I knew that they weren't.
Ruby has just started to really notice Lila. She wants to play with her. Unfortunately she want to grab, pinch and eat her. We will be working on gentle and soft for a while I am sure. But Lila loves it. I didn't catch the really cute ones of both of them smiling but they like each other.
Oops. A hand in the mouth
Lila laughing after pulling ruby away for being too rough.