Happy Birthday Lila!!!!!

Dearest Lila,
Happy Birthday!!!! Two years old! Two years of having you in our home and in our hearts! What a big girl you are. Your little body is getting lean and less "baby like". You are turning into such a stunning and gorgeous little girl. I can't believe that you are already a toddler. What a sweetheart you have become.
Lila, your Birthdays are something to celebrate! On your last birthday we had no answers about your future or what was going on in that little body. This year we know that you are truly and angel baby. That your birthdays are limited. Last year I was still holding out hope that you would suddenly develop and make strides and that this year you would be holding your head up and walking to me, and while that isn't going to happen in this life I want you to know that you are more than I could ever hoped for!! Your sweet and patient spirit fills our home and blesses our lives. You have done more for this family than any two year old could ever have done.  You inspire and you give unconditional love. You are truly an old soul sent here to touch lives for a brief and wonderful moment.  Whoever knows you is blessed and comes away with more gratitude and a sweet feeling of love. Simply put you are magical. You are lovely. You are everything I never knew I needed. You are my greatest teacher. I am so lucky to be your mother, to be your best friend and constant companion through your short journey on this Earth.
I am not sure if there will be a third birthday, but I am sure that you and I will not be separated for long. The day that you leave me will be the hardest and most devastating moment of my life but I will think of the day where I will see you standing waiting for me. With that huge tooth filled grin and with that whole body laugh I will scoop you up in my arms and listen to that sweet voice tell me for the first time that you love me.  I can't wait for that moment. I see glimpses of it now in your sweet eyes. From time to time I feel like the Vici syndrome is taken away and at that moment you will look straight in my eyes and give me a knowing smile, and for that wonderful minute I know you see me. I know you know I am your mommy, and I see what is waiting for us in the next life. I know you will be my best friend and sweetest daughter.
Your daddy and I love you so much Lila. We talk about you constantly. We revel in the smiles and in the laughter that we are so blessed to receive. We talk about your greatness, about how you draw people to you. We are amazed by how children want to stand by you and touch you and how adults are compelled to feel of your goodness. We have been so lucky to have these last two years with you and hope and pray that there are at least two more. We love you so much! Happy Birthday baby!
love
mommy.

pioneer day

 Quinn was off on Pioneer day so we were so excited to spend it together. We lounged, watched the parade and got to go to dinner with grandma and grandpa up the canyon. Lila was so good that night. She decided to give us a little gift and not scream that night. I actually read her a goodnight story and got to rock her and sing to her. It was magical

So lately if Lila falls asleep we are stuck wherever we are. This time she fell asleep in target. Which is pretty much bad news because then you have to walk the aisles and find stuff that you would never see and yet have to buy. This is Quinn with his new TV chair. He fell in love and sat to wait out Lilas nap. Kinda funny.

hips

If you have seen baby Lila lately you may have noticed that her legs swing to one side. That's because her hips are coming out of their sockets, something that is pretty common with kids that can't walk. So we were off to yet another specialist, the orthopedics team at Primary. He looked at her x-rays and suggested a brace. (She is modeling it in the pic above) He explained that if we don't fix it then in 10 to 20 years she could have painful arthritis. I told him that the oldest kid ever with Vici was 8. He looked at me and said, then do whatever she wants, if she doesn't want it on don't wear it.
 I like this guy.

I have a problem....

So lately I have realized that I have a little bit of a problem. After I leave the house for the day I will look back at Lila in the car and see that I have dressed her just like me! Its so embarrassing. Please tell me I am not the only one. Here we are in our matching polka dots for church on Sunday.

melt your heart

Gracie made this bracelet for Lila. She even used her special flower charm. So sweet.

ipad

Thanks to those people who developed the apps that special needs kids can use !  Look how happy little miss is listening and watching Dr. Suess ABC's. Does anyone know of good apps that don't have to be touched to work?

First Hair cut

I cut Lilas hair and sobbed the whole way through. I really didn't want to cut it but with all the laying on her back and in the stroller she does it would get matted, caught and pulled. I couldn't get myself to cut the top though. So her cute giraffe horns are intact.
Now she has a haircut like Jeff from the bachelorette, short on the sides long and pompadour- like on top ; )