We saw the Developmental Pediatrician today. No good news there. Lila is on the developmental level of a one month old. She also is showing symptoms of cerebral palsy. I could not be more devastated. Also her eye sight does not seem to be improving much. We may have a little girl with Cerebral Palsy who is blind.
We don't know for sure. Obviously we are still hopeful. Maybe these symptoms may not mean anything.... I'm just frustrated, scared and cannot believe this beautiful angels bad luck! I mean what are the odds that a kid has cataracts and CP??!! I am venting and maybe venting on a public blog is not the best platform but it's a little therapeutic. I also am hopeful that people will still remember us in their prayers, maybe people I don't even know who have found this blog. We need all the prayers we can get right now.
14 comments:
Oh Kris I am so sorry! But they weren't totally sure were they? We are praying for you! If you are in the mood, lets do lunch! I'll text you or call.
Quinn & Kristi,
Remember last Friday our talk in the back seat while driving to dinner...you will be that mother. Lila had to have known you would be that mother for her.
May you always know we support you and love you. Please let us know how we can best help you through this journey.
Daph, Ty, Mitch & Lexi
Kristi,
I want you to know that you, Quinn and Lila are always in our prayers. We pray for you daily and so do all your Bullock cousins. We love you.
Barbara
I'm still thinking of little Lila all the time. She's in my heart. You have our love, prayers and support.
Kristi--your darling family has been in our prayers for weeks now! You are always in my thoughts and I continually check your blog for updates on how you're doing. Lila is so blessed to have you as her parents! I cannot even imagine all the rollercoaster of emotions you must be feeling right now. We will continue to pray for you!!!!
I love you three SO much!
Lila is a little shining star, and I know that you are doing everything you can for her. I know that there is good news to come for you, Quinn, and Lila. My soul(u know), hurts for you Kristi, but I am very hopeful that there will be good news to come. You can do this, and I am sending out my prayers and universal-helps for you and your beautiful family. Love u!
People you don't know HAVE found this blog, and ARE praying for your beautiful Lila. I'm one of them (friend of a friend of a friend). My heart and prayers are with you every time I read another post. May you have the love, faith, confidence, peace, strength, and patience that you will need to raise such a precious child. A little anger and pushiness will help now and then, too. God bless you all.
we are always praying for you guys and Lila, I am sorry you have to go through something so difficult.
Oh Kristi, I'm so sorry. I'm praying for all of you and I'm praying for some good news soon. I love you so much.
We are thinking and praying for you guys! We love each of you so much!
Obviously, your family is in our prayers. Just yesterday Steve asked me why Lila's birth announcement was still on the fridge after so many months and I told him it was to keep her a constant reminder to me to have your family in my personal and family prayers (and she is so ridiculously gorgeous I like to look at her!).
Don't feel bad about venting on here. I would be thinking the same things you are, and like I've said before, you are a warrior mom and I'm so proud of your strength and honesty.
Oh Kristi! I've had you so much on my mind, and now I know why! I'm so sorry. I hope that her delay is just because of all she's been through (a LOT hello) and her eye sight. they always made me unnecessarily anxious with Peter. I so so hope that is what this is. Peter's therapist wasn't very helpful in recommends, sorry. I think it's so great to be honest by the way. Otherwise we don't know and can't help. I would do anything!
Kristi. You are amazing. Lila seems so beautiful and happy just like her mother. I can't imagine your pain, but I also can't imagine a more beautiful spirit you get to raise. Its not how things are planned sometimes but its these times that mean the most. You are wonderful.
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