ugh! I am so frustrated! We are having a hard time fitting Lila's right eye with contacts. The contacts that we keep trying bubble off her eye and she can blink them out, and every time we order in new ones it takes up to two weeks. Also Insurance has to OK the genetic testing before we can do blood work and they are dragging their feet. A nurse up at Primarys told me that they take up to a month to finally deny you. Then your doctor has to write a letter pleading your case before they take up to another month to OK it , then the tests take up to a month. Genetics can't even see us till April. It's a living nightmare. How can they say your child might have a syndrome and then not let you take the tests!!!??? I don't understand! In the meantime I am googling every syndrome under the sun and loosing hope that Lila will ever be normal. This is the hardest thing that I have ever done.
Side note: After I wrote this I called my insurance, apparently they never received a request from Primarys!!!