I like this picture because if you look closely you can see her cooing. I love those little pursed lips.
Six months. I must admit I have been dreading it. Six months just seems so big. When we first started to get bad news I just kept thinking I wish I could see her at six months I bet she will be grabbing things and moving her head and holding it up..... well, we aren't there. It's pretty devastating.
Regardless, Lila is a beautiful girl. Her pediatrician told me that in all the specialist notes that are coming back the comments are, the cutest baby, so gorgeous. She said she has never had specialists comment on how cute a kid is before. (hopefully that means that there is no underlining syndrome, since some have physical manifestations)
Lila is a sweetheart. She has the best temperament. Just cuddly, sweet, cooing and drooling. We are so blessed to have her in our home and hearts.
Regardless, Lila is a beautiful girl. Her pediatrician told me that in all the specialist notes that are coming back the comments are, the cutest baby, so gorgeous. She said she has never had specialists comment on how cute a kid is before. (hopefully that means that there is no underlining syndrome, since some have physical manifestations)
Lila is a sweetheart. She has the best temperament. Just cuddly, sweet, cooing and drooling. We are so blessed to have her in our home and hearts.
4 comments:
Awww that is so sweet that they are comemnting on how cute she is. She really is a beautiful girl like her mommy! I will keep my fingers crossed that her test results come back with some answers for you. I know it must be so frustrating not knowing what to do next and what you can do to help her. Keep us updated :) and we will be praying for you guys.
Kristi- I just learned about your little family's struggles and wanted to say you've been in my thoughts and prayers! She is lovely and so is your big heart. I can't imagine... But know your an example to others and a she is a blessing to us all! Xoxo please know we are here for you if you ever need anything!
She's so beautiful! I love her teensy clip in the post below. You are doing great, this waiting game must be agonizing. Hang in there- you are not alone.
She really is gorgeous. And you can see in her that she is so brave and strong. We're praying for you as always Kristi. I found a letter from you a while back the other day. I'll email it to you since it meant so much to me and still does which is why I kept it. Remember you're strong!
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