Lila's EEG looks better. Not normal, but a little bit better. She is still having abnormal bursts of energy in her left hemisphere. She has to go off the steroids (thank goodness!) so they are putting her on a anti seizure medication to see if that will help. I am really excited to get her off the steroids and see if that will help in her alertness and also in her comfort. Keep your fingers crossed for us!
What a good daddy!
Quinn and I were joking that our romantic dates have to be at the rainbow cafe at
Primarys these days (actually pretty decent food). In this pic I asked him how excited he was to spend his days off at the hospital all day, this is the look he gave me. I am so glad he is here to be with me and to help lighten my mood. He has been so great.
What a little sweetheart!
Lila's EEG looks better. Not normal, but a little bit better. She is still having abnormal bursts of energy in her left hemisphere. She has to go off the steroids (thank goodness!) so they are putting her on a anti seizure medication to see if that will help. I am really excited to get her off the steroids and see if that will help in her alertness and also in her comfort. Keep your fingers crossed for us!
What a good daddy!
Quinn and I were joking that our romantic dates have to be at the rainbow cafe at Primarys these days (actually pretty decent food). In this pic I asked him how excited he was to spend his days off at the hospital all day, this is the look he gave me. I am so glad he is here to be with me and to help lighten my mood. He has been so great.
9 comments:
The first picture is what I was expecting in my text... :)
If you don't see the alertness immediately, don't lose hope. My nephew has a seizure disorder and they had to try some different seizure meds to find one that didn't zonk him out, but still helped with the seizures. (Not that trying some different meds sounds fun at all, but when they found the right combo, Griff's personality came right back and he's doing much better.) Hang in there! I'm keeping Lila's name in the temple, and you are in my prayers.
fingers crossed!
Great news! It is always nice to get them off those steroids too.
I can so relate to those rainbow dates. I liked the food too. Glad to hear no more bad news on the EEG, can't wait to see what happens with the steroids.
still sending positive thoughts your way. cam't wait to hear how the new meds help.
you two are the best couple! Lila looks so cute, that little trooper-Could you put her in any cuter outfits?! I think not. Fingers crossed!!!!!
Oh sweet Lila! I'm sorry about the other day! I still want to talk lets do lunch or dinner
Praying for you guys. You are both fantastic parents and we love having you as friends. HUGS!
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