Our Neurologist said that Lila's EEG's are looking more and more abnormal. The abnormal bursts of electricity that were just in her left hemisphere are now also in her right. He thinks that even though she isn't manifesting physical signs he believes that she is having infantile spasms, or seizures. He recommends that we give her high doses of steroids. They don't know why it works but for some reason it can normalize the EEG's. It's pretty nerve racking to make these kind of decisions, but we have decided to go with his recommendation. Side effects are that she will be hungry (actually a good thing) she could get cranky and that she won't have an immune system. So we have to be really careful with her the next few weeks.
The Dr says that if this doesn't work we are nearing the end of his capabilities. We might need to think about seeing sub specialists around the country. Obviously this is pretty devastating. I feel like a broken record but please pray for us, pray for Lila please pray that this is what Lila needs and that she will be better. She has another EEG on the 23rd to see if her brain waves have normalized. We unfortunately have gotten use to waiting for bad news.
I am feeling pretty beat up and defeated. Lila, to me, seems to be regressing. We haven't heard her gorgeous voice in days and her visual activity has decreased. She also has stopped sucking on her hands, something that she was doing constantly a week ago. It's my worst nightmare realized. I pray that Heavenly Father is with us and especially with our little girl.