Saturday, July 14, 2012

worst nightmare.... I guess its not so bad

When we were first taking Lila to specialists we saw a developmental specialist at the U. Lila was about four months old at the time.  When we walked into her office there were tiny wheelchairs and equipment for severely disabled kids. I hugged Lila to my chest and just prayed that wasn't her future. How could my little, gorgeous baby ever need a wheelchair? I had a feeling that is was though. I was so devastated that this could happen to us.
Well, almost two years later we got Lilas adaptive stroller, although it really is just a more collapsible wheelchair. Quinn and I were pretty sad about it. In the b.o.b we can at least pretend she is a normal toddler just taking a nap. But as we took her (we need to come up with a name for it) for a spin today I realized its not that bad. Lila seemed pretty comfy.  As I held my best friends hand and my perfect baby smiled at me I thought, "we are doing it!" I am living what I thought was my worst nightmare and there are beautiful moments. Its not all sadness and grief. We still have laughter, love and a future to look forward to. I love these two. I am so grateful to traverse this road with them.

6 comments:

Jett Boseman said...

She DOES look comfy! I know those same feelings...you guys make Cody and I feel more confident as we deal with things for Jett. You are all an inspiration! Love, Tennille

Barb said...

I think she looks comfortable, too! And your last few sentences were so sweet and poignant. I'm so glad that you are joyful and hopeful. xoxo

blythe said...

You are such a great momma! I love reading your sweet words about Lila.

Dylan & Natalie said...

You guys are an amazing looking family! Lila is gorgeous. You and Quinn are amazing people who I wish were still in my life!

Kelli said...

:-) love you!

Robbie and Margot said...

I love this picture, she does look comfy. Just think of all of the places her new stroller will take her and all of the great memories you guys will make because of that stroller. She is one precious girl!