worst nightmare.... I guess its not so bad

When we were first taking Lila to specialists we saw a developmental specialist at the U. Lila was about four months old at the time.  When we walked into her office there were tiny wheelchairs and equipment for severely disabled kids. I hugged Lila to my chest and just prayed that wasn't her future. How could my little, gorgeous baby ever need a wheelchair? I had a feeling that is was though. I was so devastated that this could happen to us.
Well, almost two years later we got Lilas adaptive stroller, although it really is just a more collapsible wheelchair. Quinn and I were pretty sad about it. In the b.o.b we can at least pretend she is a normal toddler just taking a nap. But as we took her (we need to come up with a name for it) for a spin today I realized its not that bad. Lila seemed pretty comfy.  As I held my best friends hand and my perfect baby smiled at me I thought, "we are doing it!" I am living what I thought was my worst nightmare and there are beautiful moments. Its not all sadness and grief. We still have laughter, love and a future to look forward to. I love these two. I am so grateful to traverse this road with them.