Another new Vici family!!!

For the past few days I have been talking to the family from Australia who sadly lost two children to Vici. Well, we are pretty sure. They are just waiting on test results from the UK but from what I have learned from the mom I am pretty sure their kids were severely affected by vici syndrome. It has been incredible to talk to these parents and to share stories. We have felt so alone for so long that it feels amazing to talk to someone who has experienced the same things. I love these families and their children with all my heart. I know there are plenty of cons with social media these days but I am feeling very grateful that it has connected me to so many families.