The worst day with the best baby

You know those days where you wish you had just slept in and skipped it? That was today. We were discharged last night. We were told she is still sounding awful and has a high heart rate but that may just be due to her "neurological whatever" (are you sick of that term yet too?) So you might as well go home. After loading up the car I noticed that someone had hit the side of my car and not left a note. Nice. The whole side is scraped and dented. Both panels.
Then this morning I tried to put Lila's meds through her tube. It was completely clogged. (Never mind that it had clogged in the hospital and we just got a new one) So off to Primarys we went calling all the necessary doctors on the way to get the paperwork to get a new NJ. We got the new tube and decided to go see Grandma since we were out that way. Little Miss told grandma all about her day. It was really cute Lila was "talking" to my mom with a very serious look on her face for quite a while. We were joking that she was telling her all about her funny mom who was so happy until she frantically ran out the door to Primary's.
We headed home and while getting out of the car the tube caught and got yanked out again. So once again we headed back to Primary's. Calling all the doctors on the way to get all the paperwork in order to get another NJ placed. It was rotten.
While sitting in the waiting room feeling rather bad for myself I leaned down and told Little Miss how sorry I was that I yanked her tube out and that she would have to get a new tube shoved down her throat again. Lila looked up at me and just beamed. She gave me the sweetest smile. Every once and a while Lila looks at you like she is really is recognizing you, staring you right in the eyes. It doesn't happen a lot but it seems to be getting more frequent. She just melted my heart. I feel like Lila is my little partner in all of this medical menagerie. Except she is the strong one. I felt very blessed for her comfort on such a rotten day.