The Kurtz family has been our real life angels. Their baby James had Vici syndrome. Diagnosed when he was five months old Nichole got a hold of Dr.Vici's email and sent him a message. He got her in touch with the Docs in the UK. Because of her we have a diagnosis and maybe the chance to have healthy children in the future. How can you thank someone for that? We love this family so much!
Joseph was having a mining convention in Price and they made the drive up to see us. As soon as they walked in I felt like I had known them for years. It was amazing that they were even here considering how rare Vici syndrome is. I think there are only three of us in the US, so to have a Vici family at our home was pretty remarkable. Thank you guys so much for coming! It was so nice to talk to people who could completely understand what we are going, and have gone through. It was wonderful to hear about James. What a sweet boy. It was crazy to hear how much he and Lila are alike. I am sure they are kindred spirits.
Sweet Joseph was so cute with Lila. He kept kissing her and handing her toys. He also kept telling me about his little brother James.
Joseph wanted in on the picture.
Joe had the magic touch. Lila started getting sad so he took her and tried a little trick that use to work on baby James. She completely calmed down and actually fell asleep!
They gave Lila this sweet little bracelet and us a sign that state. "While we teach our children all about life, our children teach us what life is all about" How true that is! We love these special angels!
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I'm crying
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