Wednesday, August 1, 2012
Since that day Wendy, her husband Will, Quinn and I have spent hundreds of hours on the phone discussing what we want Lifting Lila to be. We decided that we wanted to help terminally ill children with rare conditions and their families. We wanted to do this in three ways, connect the families, facilitate research and alleviate financial burdens on the families struggling with a terminal illness. It has been a long road already. Getting a non-profit up and running takes a lot, a lot of red tape. Thank goodness we have Will! But we are excited to get going. So while we are waiting for our 501c3 status (which means we can legally start to take donations) we are wanting to start the connecting families part of the organization. I am truly passionate about this part. Having moms like Nikki, Rachele, Nichole and others to talk to has been a literal life saver for me. We are looking for families that have kiddos with rare terminal illnesses who want to connect to other families and have a support system who can relate to what they are going through. If you know anyone who fits this description please tell them about Lifting Lila.
And please check us out.......
I just wanted to give a special thanks to Wendy and Will Richards for creating Lifting Lila and making it possible. Especially to Will. He has spent thousands of hours on this. All the while finishing up MBA and law school, studying for the bar and being a husband and dad. You guys are awesome! Thank you for helping us create a wonderful legacy for Lila and for letting her live on after she passes.