I took you by the hand and we stood tall.
I have just spent the last couple of days reading through your blog. Your family is wonderful and I love reading about Lila's beautiful spirit and the way she is still with your family. I have a 6 week old daughter who was diagnosed at birth with a rare neurological condition with a life expectancy of around 2 years and so much of what you have written around Lila's diagnosis resonates with me. It has helped me to feel less alone with some of my feelings. Your writing has also given me hope for survival, and I pray that I will also be blessed with healthy children in the future. I know that it will never take away from my love for my daughter, but I desperately want a future for myself and my husband that includes living children.I am so, so sorry for the loss of your precious Lila. I can feel and see the love you two shared. It is so unfair and awful that we must outlive our children.
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