feeling grateful

A good friend of ours found some more research on Vici syndrome. A task that is not easily done. I thought we had seen it all, but we are grateful for more information even if it is hard to read at times. After looking them over I am feeling rather grateful this evening. It seems as though Lila is rather high functioning for a Vici child. I know it seems rather odd to call Lila high functioning but in her peer group she is. Many families never got smiles, laughs or babbling. I am feeling immensely blessed that we have gotten that tiny glimpse into our little Lila's personality. I will cherish every laugh, smile and conversation we have even more. Once again Lila has taught us not to take anything for granted.