Thursday, October 14, 2010

we need your prayers, yet again.

Lila's pediatrician wanted her to undergo some tests up at primary's to see what might be leading to her developmental delay. We saw a neurologist last week who referred us to an ophthalmologist this morning. Bad news. Lila has cataracts in both of her eyes. She has to have immediate emergency surgery tomorrow to remove one and then another surgery in a week to remove the other. The scary thing is that in children the critical time for the brain to interpret sight is within eleven to fourteen weeks of life. Lila is almost twelve.... meaning that the brain may not be able to interpret the stimuli and she could be blind. Also there could be complications during the surgery and she could go blind. Obviously we are devastated.
The best case scenario would be that the surgery goes as planned and Lila will be fitted with hard contacts that she will have to wear for a year until they do two more surgeries to implant new lenses into her eyes. Which then will mean that she will just need glasses to read as she grows.
So far we feel like things have all happened for a reason. Lila's pediatrician is like family and has said that with another patient she wouldn't have referred her to primary's this early in the game. Because of her nicu stay some delay is normal, and she would have given her more time to develop, but she felt the need to send her up to primary since she is so emotionally involved. Then the Neurologist told us that getting into the ophthalmologist usually takes a month or so and yet we got in in less than a week. I hope this means that these are all little miracles that will save Lila's sight. But we could still use all of your prayers, thanks....

8 comments:

Zane and Lexi said...

oh Kristi! I'm so sorry that your little family is going through so much. Please know that although we are far away, we are sending our BIGGEST prayers your way with lots of LOVE. Keep us updated... we know you'll have good news soon.

Heidi said...

oh Kristi, you guys and your beautiful baby are definitely in our prayers. I am so sorry to hear about this

blythe said...

oh my goodness. i am so, so sorry. we will definitely keep little lila in our prayers. i hope the surgery goes well. good luck!

Daphne A. Quist said...

Always. It is so tender to hear my two little kiddo's remember her each night in their own prayers as they have since Sunday. Faith preceeds the miracles.

w and w said...

Kris...I'm behind in reading all of your posts. How my heart goes out to you. How I wish I was there to hold your hand. How that darling little girl is in our prayers! Hang in there. Please know of our love...ALWAYS!

Lindsey and Tommy said...

Oh Kris...I'm so sorry to hear this news! You are all in our prayers! Please let me know if ya need anything! Whether it's a chat or even dinner so you don't have to worry about it. Hope all goes well tomorrow!

~*Felts~* said...

Thinking of you all today. BIG HUGS! Let us know how she does today, she already seems to have a high rock star spirit. I think she will be just fine :) Good luck!

The Perry's said...

Kristi,
I am so sorry to hear this. You have already been through so much. I know what it is like to live in the fear of the unknown. There is nothing to quite like it. Please know that we will keep Lila and your family in our prayers. Hang in there!
xoxo
Danielle